According to the World Federation of Hemophilia (WFH), haemophilia affects approximately 1 in 5,000 male births worldwide.
We all had those cuts or bruises like the one in the picture – ah, it never bothered us. But wouldn’t it become scary if bleeding does not stop for longer than usual? Imagine just a small injury or cut; you might end up in a medical emergency. Well, there are people who live under that threat every day.
Our bodies have a natural defence mechanism to stop bleeding called clotting factor (a type of protein). This clotting of blood seals the wound and helps to stop bleeding.
But there are men and women who don’t bleed more than others, but they just bleed longer and sometimes dangerously, even internally, especially into joints and muscles.
Every year on April 17, the world comes together to raise awareness about haemophilia and other inherited bleeding disorders. It’s called World Haemophilia Day, and it’s more than just a date—it’s a day to shine a light on the struggles, strength, and stories of those affected.
So, what is Haemophilia, really?
Let’s get into it 👇.
Continue reading ⤵
Haemophilia is a rare, lifelong condition where the blood lacks certain proteins (called clotting factors) that help stop bleeding.
There are two main types:
Haemophilia B (missing factor IX)
Haemophilia A (missing factor VIII) – more common
How Many People Have It?
It’s more common than most people think.
- Around 1 in 5,000 males are born with Haemophilia A. (Source: https://wfh.org)
- An estimated 1.1 million people worldwide live with some form of haemophilia.(Source: https://wfh.org)
- Many of them, especially in low-income countries, still don’t know they have it or can’t afford treatment.
That’s why awareness is so important.
Symptoms of Haemophilia
“According to the CDC, haemophilia symptoms can include frequent nosebleeds, joint swelling, and prolonged bleeding.”
“The WFH estimates that over 1 million people globally live with haemophilia, many of them undiagnosed.”
Haemophilia symptoms can vary depending on how severe the condition is. Some people may have frequent bleeding episodes, while others may only notice symptoms after surgery or a serious injury.
Common Symptoms:
- Easy bruising – especially in children who are just learning to crawl or walk.
- Frequent nosebleeds that are hard to stop.
- Bleeding into joints and muscles – causing pain, swelling, or stiffness.
- Prolonged bleeding after cuts, dental work, or surgery.
- Blood in urine or stool.
- In babies: unusual fussiness, swelling after bumps, or excessive bleeding after circumcision.
In girls and women (especially carriers), symptoms can include:
Frequent bruising and bleeding gums.
Heavy or prolonged periods (menorrhagia).
Frequent bruising and bleeding gums.
How is Haemophilia Diagnosed?
Early diagnosis can make a huge difference in managing haemophilia and preventing long-term damage.
Diagnostic Steps:
- Family History
- If there’s a known history of bleeding disorders, doctors may test newborns or children early on.
- Blood Tests
- Clotting factor tests measure how much Factor VIII or IX is in the blood.
- If levels are low, the person may be diagnosed with:
- Mild haemophilia (5–40% of normal factor level)
- Moderate haemophilia (1–5%)
- Severe haemophilia (<1%)
- Genetic Testing
- Can confirm the specific mutation and help identify carriers, especially in women or potential parents.
- Prenatal Testing (Optional)
- Families with a known history can opt for testing during pregnancy to check if the baby has haemophilia.
Can It Be Treated?
Yes, and the treatment has come a long way!
- The most common treatment is giving back the missing clotting factor through injections.
- Some people now use long-acting medicines that reduce how often they need treatment.
- There are also non-factor therapies that work in new ways to protect from bleeds.
- And the most exciting? Gene therapy—a once-in-a-lifetime treatment that might allow the body to make its own clotting factor
These advances mean many people with haemophilia can now live long, active lives, but only if they have access.
❤️ Why This Day Matters
World Haemophilia Day is a reminder that every life matters. It’s a chance to:
- Spread awareness so more people get diagnosed early
- Support families who live with the fear of uncontrolled bleeding
- Push for fair access to life-saving treatments
- Celebrate the bravery of patients, caregivers, and doctors
Behind every number is a name. A face. A story. A child who just wants to run without worry. A parent who dreams of a normal life for their son. A young woman finally finding answers for her unexplained bruises.
So today, light up your social media, talk to a friend, donate, learn, share, and show your support. Because when we all care, we all bleed a little less.
Conclusion: A Future Without Fear
Haemophilia may be rare, but its impact runs deep. Behind every diagnosis is a child missing school, a parent losing sleep, a woman unheard, or a man pushing through silent pain. But with awareness, early diagnosis, and better access to care, we can turn fear into freedom.
World Haemophilia Day reminds us that this journey is not walked alone. Together—through science, compassion, and the simple power of being informed—we are breaking silence, breaking barriers, and building a world where no one has to bleed in the shadows.
Let us stand with those living with haemophilia. Let us speak for those still waiting to be heard.
Because everyone deserves a life without fear of a bruise, a cut, or a fall.
Men bleed. Women bleed. But together—we heal. ❤️
📚 Source:
World Federation of Hemophilia (WFH).
🔗 https://wfh.org
Disclaimer:
This article is intended for informational and awareness purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your doctor or a qualified healthcare provider with any questions you may have regarding a medical condition. The information presented here is based on publicly available sources at the time of writing.
Leave a Reply